Rehabilitation research SIG

Global Hip Fracture Recovery Research Network Special Interest Group

Vision

To improve outcomes from hip fracture by working collaboratively with scientists and clinicians from around the globe committed to advancing knowledge and carrying out studies.

Aims

Create a network of investigators and clinical sites interested in performing collaborative multidisciplinary hip fracture research to determine the underlying science of recovery from hip fracture (from the time of fracture up to 24 months post hip fracture) and to design and rapidly test interventions directed at improving post-hip fracture outcomes.

Activities and outputs

Create a registry of clinical sites that are currently undertaking or interested in performing hip fracture recovery research. The registry would include information such as volume of hip fracture patients at site, site facilities for conducting different types of studies, and experience of investigators in conducting studies of hip fracture patients.

Develop a taxonomy of interventions to allow more standard evaluation of interventions across studies.  This would serve to advance understanding of the types and aspects of interventions that are known to produce positive outcomes which can be used in designing new, multi-modal interventions.

Develop a limited set of outcomes that cover major functional and physiological domains affected by hip fracture that are relevant for examining outcomes from hip fracture at clinical and population levels and that can be recommended for use in future trials of hip fracture patients.

Plans for 2014

Identify and assemble a registry of investigators globally who are experienced and interested in participating in multi-site studies of hip fracture patients in order to facilitate rapid testing of novel interventions.

We are currently designing and pre-testing a survey and would like to distribute it to FFN members and those who register for the Madrid meeting, so that we can engage those attending in discussion around their interest and commitment to pursuing studies of hip fracture patients.

Communication

Attend FFN annual meeting with workshop and/or plenary sessions.

Use FFN or other website for network communication and knowledge dissemination.

  1. Study/Site Registry Repository
    • Current studies underway
    • Sites undertaking or available for research with appropriate contacts and information about the sites and investigator experience
    • Sites seeking collaborators for current or proposed studies
  2. Education
    • Webinars led by SIG members
    • Lectures on relevant topics – live with discussion and stored for future use
    • Discussion boards around topics of interest to SIG members
    • Discussion boards to include patients, providers and scientists
  3. Meetings
    • Conference calls
    • Virtual meetings

Membership application

Open to FFN members and others embracing SIG vision and interested in participating.

No additional membership cost to FFN individual members.

Future:  Consideration of fee for industry members and those who are not members of FFN

Coordination and SIG Membership

Coordination/Co-Leaders:                   

Jay Magaziner (USA) and Lauren Beaupre (Canada)

Contact details:

Jay Magaziner - JMAGAZIN@epi.umaryland.edu
Lauren Beaupre - Lauren.Beaupre@albertahealthservices.ca